swashbuckling: (as ♠ but man is not made for defeat)


I think this is really a huge step. I mean, sure it's figuratively small, but every little bit of awareness for this disease is only going to be a step forward to hopefully better procedures. And if people can learn to understand and use compassion, it's a helluva lot better than misunderstanding and being cruel, however unintentional the cruelty may be.

Like I was saying on twitter, I had a conversation with my Mom yesterday wherein I confessed that I seriously feel worse for those that develop RRP later on in their lives--because they've had such a taste of normality(in general, okay) and suddenly their entire lives will be turned upside down because wtf is this that they've contracted?! I mean, we still know so little about the disease. But on the other hand, those of us that have had it our entire lives at least...well, we know the routine. We're used to it and there's never been anything else for us, it's simply part of our lives. And there might not ever be another way of life for us, depressing as it is/seems/can be, or for those that contract it later on in life, if awareness is not spread so that their can be more medical research done and hopefully, better ways found to treat this.

So, thank you AGAIN, RRP yahoo community! I love these people that post such wonderful encouraging messages. I really wish I lived closer to some of them, it'd be a neat experience. Also, the president of the RRP foundation's voice is hot; can she share after my next surgery? o///o

Share it and help spread awareness! :) ♥♥♥
swashbuckling: (Default)
Okay, so I'm cold and bored while house/dog-sitting, but that's not really why I'm breaking my hiatus for this short moment.

This is why I'm breaking the hiatus. That a million times over. I never would have thought that RRP would ever make it to something like that--even if it is "just a website", although it is CNN. A million people probably won't even skim it, but the fact that this disease is somehow, though very slowly, being more recognized as something ELSE caused by the HPV virus(certain strands of it, anyway) other than just cervical cancer...that it too, can be fatal and very hard to live with at times--this is a really big step for those of us that have this, whether we've had it since birth like myself, or ended up with it later in life.

Man, I am just in amazement and this really makes me happy. TBH I wouldn't have known about it were I not on the RRP yahoo email list. Someone linked to it and someone else has already replied back within five minutes saying they could have been reading about their own child. Sometimes being on this email list brings really depressing emails, but things like this? I don't mind them at all. There is hope, you know? There might be more than we think.

Personally, I've got about three weeks until I get to see my doctor, and from there a surgery will probably be scheduled. It is really stressful to think about and I'm hoping that they will be willing to work out a payment plan with us even though we're still trying to pay off last year's surgery. But while it's very stressful, I also have this really impatient and excited feeling to know that I will probably get to speak and sing and do whatever I want with my voice come the end of January or beginning of February. I haven't been able to talk properly for a few months now, and my voice has been going since before I left for Mexico over the summer; still, it's a strange kind of hope and yearning I have now. I'm accepting it even if I know I feel guilty as well(for costing so much money health-wise) because it will be easier to function as a ~* human *~ if I can have a voice again, and somehow get a job in this crappy economy. My self-confidence will go shooting back up, too, in all honesty.

Man, then this page I linked to? that brightens me up even more. I mean, we all gotta get through this the best we know how, but jeez, just thinking that now awareness has been spread where in general there is pretty much NONE?! amazing. There is no other word for it.

I am gonna leave this public, in hopes that whoever randomly comes across this journal will by chance click on the link, curious as to why this cheesie is getting all sentimental on a cold ass Texas winter day. Or something like that. ;D
swashbuckling: (♠ pitting wits wid u...)
.HIATUS.
November 6th-November 24th(???)



Be good for the month to come; remember, Santa is watching you.

(Holiday card exchange post here, if you missed it!)

♥♥♥
swashbuckling: (♠ you'll work yourself to death)
.HIATUS.
June 27-July 18(???)

Off adjusting my jingle bells down in good ol' Mexico, see ya, chickadees! ♥♥♥

(Here's hoping we take the jeep instead of a bus, so we can jam all the way down there, YEAH YEAH YEAH /o/)
Page generated Oct. 20th, 2017 02:13 pm
Powered by Dreamwidth Studios