swashbuckling: (Default)
♠ tormenta ♠ ([personal profile] swashbuckling) wrote2010-12-22 04:47 pm

i'm picking up good vibrations

Okay, so I'm cold and bored while house/dog-sitting, but that's not really why I'm breaking my hiatus for this short moment.

This is why I'm breaking the hiatus. That a million times over. I never would have thought that RRP would ever make it to something like that--even if it is "just a website", although it is CNN. A million people probably won't even skim it, but the fact that this disease is somehow, though very slowly, being more recognized as something ELSE caused by the HPV virus(certain strands of it, anyway) other than just cervical cancer...that it too, can be fatal and very hard to live with at times--this is a really big step for those of us that have this, whether we've had it since birth like myself, or ended up with it later in life.

Man, I am just in amazement and this really makes me happy. TBH I wouldn't have known about it were I not on the RRP yahoo email list. Someone linked to it and someone else has already replied back within five minutes saying they could have been reading about their own child. Sometimes being on this email list brings really depressing emails, but things like this? I don't mind them at all. There is hope, you know? There might be more than we think.

Personally, I've got about three weeks until I get to see my doctor, and from there a surgery will probably be scheduled. It is really stressful to think about and I'm hoping that they will be willing to work out a payment plan with us even though we're still trying to pay off last year's surgery. But while it's very stressful, I also have this really impatient and excited feeling to know that I will probably get to speak and sing and do whatever I want with my voice come the end of January or beginning of February. I haven't been able to talk properly for a few months now, and my voice has been going since before I left for Mexico over the summer; still, it's a strange kind of hope and yearning I have now. I'm accepting it even if I know I feel guilty as well(for costing so much money health-wise) because it will be easier to function as a ~* human *~ if I can have a voice again, and somehow get a job in this crappy economy. My self-confidence will go shooting back up, too, in all honesty.

Man, then this page I linked to? that brightens me up even more. I mean, we all gotta get through this the best we know how, but jeez, just thinking that now awareness has been spread where in general there is pretty much NONE?! amazing. There is no other word for it.

I am gonna leave this public, in hopes that whoever randomly comes across this journal will by chance click on the link, curious as to why this cheesie is getting all sentimental on a cold ass Texas winter day. Or something like that. ;D

[identity profile] kuraism.livejournal.com 2008-12-22 11:01 pm (UTC)(link)
. .I feel bad for not being relevant to this post but I thought your subject said "i'm picking up good vibrators" :|.
killua: <user name="killua"> (Default)

[personal profile] killua 2008-12-22 11:08 pm (UTC)(link)
Wow, thank you for posting about this. I had no idea this even existed until now, and I really hope your surgery will go well. [hugs!]

[identity profile] watermist.livejournal.com 2008-12-22 11:22 pm (UTC)(link)

Wow that's amazing! I mean it's CNN!

Haha I thought your hiatus was over. With the icon post and all. :D

[identity profile] eotheod.livejournal.com 2008-12-22 11:56 pm (UTC)(link)
You know, ever since I friended you I've wondered about your voice but I've been too much of a wuss to ask. >_> I'm really glad for the link though, I had never heard of this. The more people that know about rare stuff like this, the better.

being NOT a ninja for a sec, just incorrupts xD

[identity profile] incorrupts.livejournal.com 2008-12-23 12:02 am (UTC)(link)
Honest mode now, this entry of yours made me like you more. Honest.
Keep it up mate, srsly &hearts

[identity profile] enacting.livejournal.com 2008-12-23 01:32 am (UTC)(link)
I'm really glad the disease is getting more attention now, because frankly people like me would've never known about it otherwise. Hopefully the increased awareness of RRP would lead to less ignorance and more understanding (from what I read in your old entries, people weren't being very nice to you because of your voice 8((). I'm looking forward to your operation and you getting your voice back as well, and that would be the best new year's gift I can ever imagine anyone getting♥♥

[identity profile] glitterbats.livejournal.com 2008-12-23 03:55 am (UTC)(link)
Fuck yes. Fucking hell yes!

[identity profile] streetrat.livejournal.com 2008-12-23 11:42 am (UTC)(link)
It's annoying that so many people suffer from it but barely anyone on a whole knows about it wtf.
I'm glad though, that this might begin to spread word to others and hopefully you'll get more help 8)

[identity profile] not-cynical.livejournal.com 2008-12-29 07:02 pm (UTC)(link)
Oh Stormie, this is AWESOME! It's a start and I'm happy more people know about it! I seriously wouldn't know about this disease if it wasn't for you, so EDUCATING THE MASSES cheers me up. *tacklehugs*